Trying to figure out exactly what is causing my RA (rheumatoid
arthritis) to flare cause I would love to use my left hand damn thing hurts
like a bitch even the oxy doesn’t work.
On the flip side all the other joints have been fixed with the Prednisone
that was hurting before the hands decided to join in with the fun. Sleep has gotten better I can actually fall
asleep since the pain is in check still fatigued but not as much, basically for
the last 5 months I have been groggy and very sleepy. It wasn’t till my hands that sealed the deal
that we could no longer hold off on the steroids. What I didn’t know was that my platelet
counts has been on a downward slide, thinking back the last time it was low is
when they figured out I had Sjorgens.
I think I may need to start asking for copies of my blood
work, definitely want to get some copies of my scans, for fun so I can make
thank you cards and funny presents for people.
Got a much needed Target Card last week, it paid for the majority of my
meds for the month of June. I just wiped
it today when I picked up three bottles for $99.
Just looking at my calendar and at the appointments I need
to add, way too many appointments, also just scheduled my vacation, haven’t
finalized exactly what I am doing just the dates. It takes a lot more planning for any trip due
to the amount of energy it acquires and the fact I am low on that. Something that is trivial or simple like
grocery shopping can wipe out someone with an autoimmune disorder. We have to plan our day, our week are month
around so as not to overdo and exhausted one.
This I have yet to learn that I can do what I did before cancer, a
simple thing like being outside all day working can mean sleeping 15 hours the next
day. Although I will have to admit that
I didn’t sleep on Thursday and Friday had maybe 4 hours which attributed to
being totally wiped out Sunday. I guess
I am still trying to leave somewhat in denial land about the fact I have
several chronic diseases that can’t be cured only treated as they flare and as
the cancer spreads.
I don’t really have much of choice know but to figure out
what the new reality is……………………………….
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