Tuesday, January 13, 2015

Apoclypse ready? Maybe a trip to the Amazon or Congo

I decided to google my latest prescription provided to me by my lovely eye doctor, the drug is Minocyline and the list of things it has treated gave me a little chuckle.   Here is the list from Wikipedia:
A list of indications for which minocycline has been used include;
·         Amoebic dysentery
·         Anthrax
·         Bubonic plague
·         Cholera
·         Ehrlichiosis
·         Gonorrhea (when penicillin cannot be given)
·         Gougerot-Carteaud syndrome (confluent and reticulated papillomatosis)
·         Hidradenitis suppurativa
·         HIV—for use as an adjuvant to HAART[15]
·         Periodontal disease
·         Perioral dermatitis[16]
·         Respiratory infections such as pneumonia
·         Rocky Mountain spotted fever
·         Rosacea
·         Syphilis (when penicillin cannot be given)
·         Urinary tract infections, rectal infections, and infections of the cervix caused by certain microbes



By looking at the list I believe I am prepared for the apocalypse, I am already taking the drug used to treat Malaria so I am good to roam around tropical jungles in the Congo or the Amazon.  Now I am taking another drug that will ensure in the event of Plague or Anthrax attack I will be one of survivors.

Apparently now I just need to build me a bunker, bury some gold, stock pile some guns, bows, bullets and ammo and get some crates of water and MRE's.  LOLl

Saturday, January 10, 2015

Eye Doctor Visit results in more Prescriptions like I didn't have enough already

Yet even more prescriptions added and it would be more expensive crap, my bank account wasn't happy when the cost of this trip to Walgreen's flashed $109.05 which I did not budget for and I have to fill my Nexium next week which is $60 more bucks, (unless I can find a coupon I actually qualify for.)

On the bright side my eye doctor finally got my insurance company to approve Restasis which is freaking $60 buck a roos, hopefully it will help with my severe dry eyes. I am crossing the fingers in hopes that this helps since the only other thing that helps is Prednisone, but my Rheumatolist will not allow me to take Prednisone long term.  Why? apparently the side effects, which by the way I am not normal and my body reacts for the most part opposite of normal so what ever is listed, the opposite applies to me, and to top if off my entire family (both sides mind you) have taken this drug for extended time like freaking decades.

Like usual I figure out a trend with my drugs, and I then test my theory, I noticed that every time I was on Prednisone ALL my inflammation disappears when I take it, to prove, I managed to convince him to give me a month's worth and this past December was the first time in over 2 years that I felt normal and could go outside with no sun glasses on.

The funniest thing of all I normally get a week or 2 worth when my partoid glands flare.  Guess what started to flare this week, lol, my left partoid gland is freaking swelling up big time.  My Oncologhist and my freaking eye doctor both understand and agreed when I explained why I should be allowed to have Prednisone long-term, but I have to convince my Rheumatologist.

Back to my eye appointment,  I learned that the glands on the bottom of my eyes the ones that have been inflamed is due to my one of many skin issues lovely Rosacea, which I totally forgot I had along with the Eczema/Contact Dermatitis (mostly hands and knees) and Psoriasis (Scalp and Elbows). .  Ugh, so I now have to take an antibiotic called Minocycline that has a side effect of Photosenstivity, hmmm yeah I already have that in spades at least it only cost $5.  Problem is the pharmacy only had like 5 pills so I will have to go back hopefully soon to get the rest of that prescription along with my Evoac Prescription.  Over the counter wise I had to pick up Thera Tears SteriLid eyelid cleanser, according to my instructions on the printout from my Doctor I have to use this 4 times a week.  Not sure how long this one small bottle is going to last hopefully a month since it is $15 buck a roos.

As I figured the trip to Chapel Hill drained the body allot the crappy weather didn't help either to top it off it looks like a very bad flare is taking hold of my body.  When we got back from the Hill the girls and Tonya stopped in to visit, and then Skylar wanted to watch Ghostbusters 2, since we had watched the first one over the weekend.  By the time the  movie ended it was Skylar bed time, Carrie actually had already passed out and not too long later I hit the sack.  Yeah I woke up the next morning long enough to watch some Dog the Bounty Hunter, eat some food take my medicine which was late, meaning my body wasn't very happy and was hurting.

Once the meds took effect I went back to bed, I was briefly awoken as kitty was pawing me to see if it was safe to snuggle since it was cold, once she determined I was too tired to toss and turn she snuggled between my calves.  So we Sleep from 11pm to 9am then 11am to 5pm.   If the body is still aching and the gland swollen on Sunday I will have to email the doctor for some Prednisone, and email both my rheumatologist and oncologist about the pain and soreness.

My next appointment will be my oncologist in Feb and then Rheumatology in March.  I also still need to make appointment with my ENT, Dermatologist, GI Doctor and GYN.  I am not looking forward to the Dermatologist cause I need to get my prescriptions which will not make my bank account happy,    And lets not forget the dentist but I have to get some insurance for that first another expensive appointment that I can't afford anytime soon which doesn't bod well for my teeth that haven't been capped and are crumbling as I type.  Already had to that have crumbled away and another that is in the very back that is half way gone.  All because I have no saliva and a mouth that is drier than the Sahara Desert.

Monday, January 5, 2015

Eye Issues and Scan Anexity


My monthly Eye Appointment approaches and as I suspected the month supply of Predisone I got in December was successful in keep my Eyes in check and knocked most of the inflammation out, for the most part I got away without wearing my sunglasses all the time indoors or outdoor.  And naturally it has been 2 weeks since I took the last of my Predisone and wouldn't you know my eyes are inflamed, my joints are inflamed, my partoid glands swollen and I am pretty sure my left eye has bacterial conjunctivitis for the up-tenth million time.  Both eyes are burning and itching more than ever and the projected weather front isn't going to help.

From what I gathered from the Weather Report a nasty cold front is coming across the United States which means the heat will need to be turned on which is going to make things worse.  Nosebleeds and burning itchy eyes and severe photo-phobia, ugh.

A few appointments ago we decreased  my flexeril and added Neurton in attempt to get the fibromylgia under-control.  It seemed to be working but now I am also 95% sure it isn't and I am hoping increasing it back up will relieve the soreness and pain in my lower back.

Nervousness and Anxiety aka Scan Anxiety are also creeping in as it always does when it gets close to check up time to see if my Autoimmune Disorder is still winning the war with my Cancer.  Every new pain and strange sensation pulls at one's nerves, my fingers are crossed that by increasing my flexeril back up will fix the soreness and  pain issues.  However I am not certain all the soreness and pain can be connected to the decrease in Flexeril since some of the pains I haven't had before and some others I did when my liver was cover with cancer.  I guess I will find out in Feb since I can't refill my Flexeril till the middle of the month and my Oncology appt is at the beginning of February.

Oh well in the mean time I have to buckle down and open my Etsy and Ebay store so we can make money to pay my increasing pharmacy bills, and to pay for gas and food for my doctor trips. Got to love the #cancerlife and #sjogrenslife.