Sunday, November 22, 2015

16 CT Scans and 2 many Specialist Doctor's

Eight years people Eight years of getting CT scans twice a year, I have watched the contrast go from crappy chalky looking disgusting mixed with cola, to a clear contrast in lemonade or can be mix with whatever you bring.  Huh??  That is what I said apparently I can bring whatever I want to drink to mix with my contrast…ugh News to me but apparently that has been an option for a while.   I think I may be the only Stage IV Breast Cancer patient that started treatment in the old Cancer Hospital that is now a walkway.  My jacked up Immune System and Cancer Requires, like Six Specialist doctor's all with clinic's in different locals around Chapel Hill and really none of them work on the same day. In the end only 1 gets the finally say on all treatments that would be my Oncologist.  

Scans are still NED, I actually read the result this time, and learned that I have:
Lungs:  Tiny subpleural right middle lobe nodule (4:37) is unchanged. No airspace consolidation or pleural effusion.

BONES:
Stable rounded sclerotic focus in the left glenoid, likely bone island, since the earliest available CT of December 2012.

What in the Hell is a bone island?  I guess I will have to do some googling.

More doctor’s appointments in the next two months, the month of December will bring forth the eye doctor.  My eyes are the most troubling and quickly becoming as expensive as the damage done and continued to the teeth.   I have yet to pinpoint what cause the eyes to flare, but it isn’t funny, headache, dizziness and a trip or two to the porcelain god from the nausea.  I have a feeling I have yet another infection or scratches on my cornea, not really looking forward to the trip.  After the other day I am going to have to find some good blackout curtains that match my decor, cause me and the sunrise are not good friend and it likes to disturb me by shining right on my freaking bed.
The month of January will bring forth two more appointments Dermatology and Rheumatology.   

My oncologist is concerned about some the damage my skin is getting from the prednisone and antibiotics I have to take to deal with the swelling and inflammation.  My skin I believe has become over sensitive, I literally got contact dermatitis from the tubing that delivered the contrast thru my port for my CT scan.  My oncologist thinks I may be coming allergic to the contrast as well since my left side was flushed after the scan.  I think some of the issues was the fact the Nurse that accessed my Port didn’t follow proper protocol,  normally after being accessed it is flushed with 2 saline syringes, and then the yellow syringe, and should have been flushed with 2 saline since I was getting blood drawn afterwards.  I told the male nurse when I got to the blood lab, he told me to call the nurse out next time and to tell them to follow protocol.  

Oh well, then I will be off to Rheumatology.   I am making a whole list for this appointment and hopefully I will remember to bring said list with me.  I definitely having serious issues with my feet crappy Raynaud’s and arthritis from Hades.   

Apparently from notes from my first bone scan I have degenerative arthritis in my left knee and both feet.  The cold weather is not helping the situation, the more I try to walk the more the foot acts up.  Funny thing is the pain and stiffness was originally when I would get up in the middle of the night.  Both feet are about the same but the right is little worse OK may be a lot since it hurts when you flex aka walking heal to toe.  I am pretty sure its is the arthritis and considering I had 2 surgeries on my right foot as a child may be why that foot is worse.   I have found that my flat sole wool lined boots are the most comfortable for the foot while also keeping them cozy and warm.  I need to get some fuzzy cool slippers for the house along with some fuzzy socks.


Oh and sleep where art thou?  Hopefully I will get my sleep back right now it is only a couple of hours which isn’t good.  Lack of sleep means a painfully day or days on the horizon.  Need my sleep so I can have some energy to finish organizing the workshop so I can open an ebay and etsy hop to make some extra cash.  

No comments:

Post a Comment