Long Overdue Update

It is funny looking back as a kid and teen rejecting your parent’s style, I remember when my mom redid the bedroom finally having time during her battle with cancer.   I was like whatever floats your boat not my style, know the one thing I did like is the upholstery she picked out for two antique chairs she picked up at a consignment shop for my 1^st unfurnished apartment.  The print is red with golden dragon fly’s little did I know a decade later I would be using that as a palate in redoing the Garage.  Now all of the items except the vanity that is in Rene living is coming back to be used.  Items back then when shook our heads out and now the furniture is going to be back on display.  Even that ugly round jewelry thing is even staying though it shall be redone. 

Speaking of flashbacks, I remember KB my coworker finding me my first sofa,  you can find all kinds of stuff at the end of the semester, those out staters leave everything on the corner, KB and I believe Eric helped load it and up and take it to my living room.  It was the ugliest plaid sofa ever, a quick trip to Walmart for a cover and some cleaner.  Had the sofa for a year till Mom showed up and bought me a sofa, then took me to the flea market for a frame and mattress (yeah and when I read an article about bed begs, I bought me a new set like 5 years later…lol) I was sleeping on a mattress I believe was borrowed from my another Aunt and Uncle Chellie and Hubert if I am not mistaken.  My recliner came from my Aunt had it through all five years of college, 3 apartments till it finally died got about 8 years that was just me, it was about 15 when I got…lol….  Dad bought me a new one around 2007 for Christmas, it too is on its last leg, but will have to last longer, have to get Carrie to perform surgery on her. 

I did buy a unfinished table for dinning but who uses a dining room it is now my work station or will be when I get in my Workshop down here.  My first dinning set that mom bought went to Dad and the Garage it didn’t last long, Noland is getting good use out of my washer and dryer that um…yeah Mom bought.  I hear what did you buy…ummm The George Forman, the wok, and all my electronics, and a car.

Back to fixing up the studio with no stairs I was happy to discover the upholstery mom used on my chair that I picked out is still available (pic on left).  I want to sew it on the front of my Black out curtains, which will be surrounding my bed so I can block out light.  I may have to take my cousin Bobbi offer in helping with any sewing needed.  My plan is to see if Ervin and Hubert can help us building I guess you can call it a free standing canopy.  I want to keep the antique bed my mom bought but due to my light sensitive and my design them I need a canopy, my plan is to have it go to the ceiling with crown molding. The canopy I have in mind is like the pic on the right except the banister and frame would be attached to the front and side wall instead of the bed.   And yes an aspect of my design is part Harry Potter Victorian Era, a little Steam Punk, Witchcraft kinda feel.  This pillow mom bought me actually has my color scheme which also happens to include colors of Gryffindor…

Why this obsession with Harry Potter?  Witches and shape-shifter human to wolf, has always been my favorite genre by far, I grew up watching Charmed, I dream of genie, and Bewitched.  That and I believe it was after the 6^th film of Harry Potter the Half Blooded Prince, that I got dx with Stage IV.  My goal was to read all the books and see all the movies before I died, after the last movie my goal was to go Universal, did that, now it is to go back when the open the other side Diagon Alley and London, and also go to England to the Harry Potter Sets.

 On the health front still crappy damn if I do and damn if I don’t, do nothing swelling less pain, do something pain, and even more pain and more swelling….lol……..They have increased the Methoxtrate which appears not to be doing very much except making my injuries take longer to heal.  Heat means my joints are less likely to hurt but the eyes will as the dryness and burning sensation take full stage and the dry mouth which means way too many bathroom breaks at night.  No or little heat means pain from hell and my joints literally not figuratively freeze but hey my eyes want be dry.  I have got to email the doctor’s about the heat rash since I am on the Methoxtrate currently have zinc oxide covering it but it doesn’t fell normal feels like a very bad sun burn.

On the bright side it is a lot easier being one level being able to open the door and take a walk in the woods under the shade.  Although I now have to wear my shades even more including indoors, and having to use a flashlight to light the book page so I can read it, is a pain.   I have to email the cancer hospital to get me into to see the eye doctor; I call no appts available my buddy from the Cancer Center Calls and Bam an appointment whenever I want……

In summary my sjogren’s is going wild, arthritis running wild, swelling, retaining water, burning eyes, and swollen glands, and pains I am not quite sure what is causing it.   The experts say exercise will help the pain, yeah well my joints apparently have a different manual, my Raynauds is also getting worse, trying to keep that under-control means the eyes take hit…ughhhhh.  I also got to fill out SSDI papers and figure how much money I don't have...lol............