It looks like I will have to go on another drug to try and get my autoimmune disorder under control. Funny thing is that the drug is also used for cancer although at a higher dose than what I will be on. Before I can take the drug I will get a Full CT scan with contrast on August 1st, if my cancer is still in check my ONC will give my Rheumatologist the green light to start Methotrexate, if the cancer is back than I will most likely go back on Abraxane. So basically either way I will be taking a chemo drug at least the methotrexate is a pill and will be in a very low dose.
Hopefully this drug will get the inflammation undercontrol,
the prednisone helped to regulate my temperature control and helped the joints
but did nothing to the inflammation in my hands and feet the reason I was put
on the drug. Basically my “quality of
life” as the doctors put it hasn’t been going very well with my out of control
immune system attacking all my healthy cells. I have had to limit my activities and work
trying to get my body back into sync. Yeah
about the closest I have gotten to an eight hour shift was yesterday, doc said
I looked better, yeah because I barley do anything and it’s a Tuesday meaning I
sleep all weekend and took a nap yesterday which is probably why I couldn’t
sleep last night.
For some reason my body isn’t much interested in normal
hours and just acts plane crazy from day to day. One day everything “a o’kay” than BAM the
anvil falls on the coyote head again the next.
And to top it off apparently according to the Brain Doctors “Neurology” I
dream too much…..REALLY?
Oh
and apparently they are not supposed to be vivid 3D like I have…... Well at
least we have already established I am not normal. As usual I had my ONC pull the report up and
according to the notes beside the fact I dream too much, that I will have to
take ANOTHER DRUG to limit my dreams because I am spending too much time
dreaming and not sleeping or as the “neurologist” put it I am not advancing to
deep sleep…At least I now know why I feel like I have done a marathon when I
wake up considering my dreams involve flying, running, escaping aliens, blowing
up shit, etc.
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